Medical Informatics Initiative
The Medical Informatics Initiative is a state-funded project to connect all university hospitals in Germany as well as other research institutions, companies, health insurance companies and patient representatives with the aim of exchanging data between (medical) research and care (of patients). A five-year development and networking phase from 2018 was followed by an expansion and extension phase in 2023. Now that data integration centres have been established, the data sharing strategies developed are to be institutionalised and the exchange of data promoted.
Further information:
Medical Informatics Initiative. About the Initiative. https://www.medizininformatik-initiative.de/en/about-initiative
For background information on the initiative, see also, for example:
Strech, D., Graf von Kielmansegg, S., Zenker, S., Krawczak, M., & Semler, S. C. (2020). „Datenspende“ – Bedarf für die Forschung, ethische Bewertung, rechtliche, informationstechnologische und organisatorische Rahmenbedingungen, 43ff. https://www.bundesgesundheitsministerium.de/service/publikationen/details/datenspende-bedarf-fuer-die-forschung-ethische-bewertung-rechtliche-informationstechnologische-und-organisatorische-rahmenbedingungen
Gerlinger, K. (2022). Data mining – sociopolitical and legal challenges. In TAB-Fokus no. 40 (203). Office of Technology Assesment at the German Bundestag (TAB). https://doi.org/10.5445/IR/1000156941
For the full report see:
Gerlinger, K. (2022). Data-Mining – gesellschaftspolitische und rechtliche Herausforderungen. Endbericht zum TA-Projekt. In TAB-Arbeitsbericht (203). Büro für Technikfolgen-Abschätzung beim Deutschen Bundestag (TAB), 157ff. https://doi.org/10.5445/IR/1000156297